Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults

Toshiyuki Fujiwara, Aya Tanabe, Ken Uchikawa, Tetsuya Tsuji, Akira Tanuma, Kimitaka Hase, Meigen Liu

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.

Original languageEnglish
Pages (from-to)223-226
Number of pages4
JournalKeio Journal of Medicine
Volume58
Issue number4
DOIs
Publication statusPublished - 2009 Dec

Fingerprint

Duchenne Muscular Dystrophy
Activities of Daily Living
Neuromuscular Diseases
Locomotion
Urinary Bladder
Age Groups
Cross-Sectional Studies
Eating

Keywords

  • Activities of daily living
  • Functional independence measure
  • Muscular dystrophy

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults. / Fujiwara, Toshiyuki; Tanabe, Aya; Uchikawa, Ken; Tsuji, Tetsuya; Tanuma, Akira; Hase, Kimitaka; Liu, Meigen.

In: Keio Journal of Medicine, Vol. 58, No. 4, 12.2009, p. 223-226.

Research output: Contribution to journalArticle

Fujiwara, Toshiyuki ; Tanabe, Aya ; Uchikawa, Ken ; Tsuji, Tetsuya ; Tanuma, Akira ; Hase, Kimitaka ; Liu, Meigen. / Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults. In: Keio Journal of Medicine. 2009 ; Vol. 58, No. 4. pp. 223-226.
@article{caaa750e1bac45878f7324eb5dbbe782,
title = "Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults",
abstract = "Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item ({\%} independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the {\%} independence was lower in the older age group for all motor items. The decrease in the {\%} independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.",
keywords = "Activities of daily living, Functional independence measure, Muscular dystrophy",
author = "Toshiyuki Fujiwara and Aya Tanabe and Ken Uchikawa and Tetsuya Tsuji and Akira Tanuma and Kimitaka Hase and Meigen Liu",
year = "2009",
month = "12",
doi = "10.2302/kjm.58.223",
language = "English",
volume = "58",
pages = "223--226",
journal = "Keio Journal of Medicine",
issn = "0022-9717",
publisher = "Keio University School of Medicine",
number = "4",

}

TY - JOUR

T1 - Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults

AU - Fujiwara, Toshiyuki

AU - Tanabe, Aya

AU - Uchikawa, Ken

AU - Tsuji, Tetsuya

AU - Tanuma, Akira

AU - Hase, Kimitaka

AU - Liu, Meigen

PY - 2009/12

Y1 - 2009/12

N2 - Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.

AB - Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.

KW - Activities of daily living

KW - Functional independence measure

KW - Muscular dystrophy

UR - http://www.scopus.com/inward/record.url?scp=75149115441&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=75149115441&partnerID=8YFLogxK

U2 - 10.2302/kjm.58.223

DO - 10.2302/kjm.58.223

M3 - Article

C2 - 20037286

AN - SCOPUS:75149115441

VL - 58

SP - 223

EP - 226

JO - Keio Journal of Medicine

JF - Keio Journal of Medicine

SN - 0022-9717

IS - 4

ER -