Abstract
Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.
| Original language | English |
|---|---|
| Pages (from-to) | 223-226 |
| Number of pages | 4 |
| Journal | Keio Journal of Medicine |
| Volume | 58 |
| Issue number | 4 |
| DOIs | |
| Publication status | Published - 2009 Dec |
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Keywords
- Activities of daily living
- Functional independence measure
- Muscular dystrophy
ASJC Scopus subject areas
- Medicine(all)
Cite this
Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults. / Fujiwara, Toshiyuki; Tanabe, Aya; Uchikawa, Ken; Tsuji, Tetsuya; Tanuma, Akira; Hase, Kimitaka; Liu, Meigen.
In: Keio Journal of Medicine, Vol. 58, No. 4, 12.2009, p. 223-226.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy, including adults
AU - Fujiwara, Toshiyuki
AU - Tanabe, Aya
AU - Uchikawa, Ken
AU - Tsuji, Tetsuya
AU - Tanuma, Akira
AU - Hase, Kimitaka
AU - Liu, Meigen
PY - 2009/12
Y1 - 2009/12
N2 - Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.
AB - Objective: To study the activities of daily living (ADL) structure of patients with Duchenne muscular dystrophy (DMD). Design: Cross-sectional survey. Subjects: Seventy-two patients with DMD (mean [SD] age, 17.2 [8.1] years), recruited in 160-bed regional center for neuromuscular disease. Methods: We assessed 72 participants with the Functional Independence Measure (FIM SM), and determined the difficulty order of the FIMSM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age.
KW - Activities of daily living
KW - Functional independence measure
KW - Muscular dystrophy
UR - http://www.scopus.com/inward/record.url?scp=75149115441&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=75149115441&partnerID=8YFLogxK
U2 - 10.2302/kjm.58.223
DO - 10.2302/kjm.58.223
M3 - Article
C2 - 20037286
AN - SCOPUS:75149115441
VL - 58
SP - 223
EP - 226
JO - Keio Journal of Medicine
JF - Keio Journal of Medicine
SN - 0022-9717
IS - 4
ER -