Association between quality of end-of-life care and possible complicated grief among bereaved family members

Kaya Miyajima, Daisuke Fujisawa, Kimio Yoshimura, Masaya Ito, Satomi Nakajima, Joichiro Shirahase, Masaru Mimura, Mitsunori Miyashita

Research output: Contribution to journalArticle

21 Citations (Scopus)

Abstract

Background: Little is known about the association between quality of end-of-life care of a patient and complicated grief among bereaved family members.Objective: This study aims to examine the impact of quality of end-of-life care on complicated grief among bereaved family members in a Japanese general population sample.Methods: A mail-based cross-sectional questionnaire survey was used. A total of 641 individuals aged 40 to 79 years in the general population who lost their loved one within the period between 6 months and 10 years were enrolled. Complicated grief was assessed using the Brief Grief Questionnaire, and the bereaved family members' perceptions on quality of end-of-life care were assessed using the Care Evaluation Scale and the Good Death Inventory. Logistic regression analysis was used to identify the variables that associated with possible complicated grief.Results: Possible complicated grief was observed in 24.5% of the participants. Three components of quality of end-of-life care, namely, dissatisfaction with the explanation to the family about the patient's expected outcome, unreasonable cost of care, and family's perception that the deceased person had not achieved a sense of completion about his or her life, were significantly associated with possible complicated grief. Spousal relationship, primary caregiver, and high psychological distress also had significant association. Conclusions: Perceptions on quality of end-of-life care were significantly associated with complicated grief. Providing sufficient information to patients' family about expected outcome and enhancing patients' sense of completion about their life may prevent bereaved family members from developing complicated grief.

Original languageEnglish
Pages (from-to)1025-1031
Number of pages7
JournalJournal of Palliative Medicine
Volume17
Issue number9
DOIs
Publication statusPublished - 2014 Sep 1

Fingerprint

Terminal Care
Grief
Quality of Life
Postal Service
Caregivers
Population
Cross-Sectional Studies
Logistic Models
Regression Analysis
Psychology
Costs and Cost Analysis
Equipment and Supplies

ASJC Scopus subject areas

  • Medicine(all)
  • Anesthesiology and Pain Medicine
  • Nursing(all)

Cite this

Association between quality of end-of-life care and possible complicated grief among bereaved family members. / Miyajima, Kaya; Fujisawa, Daisuke; Yoshimura, Kimio; Ito, Masaya; Nakajima, Satomi; Shirahase, Joichiro; Mimura, Masaru; Miyashita, Mitsunori.

In: Journal of Palliative Medicine, Vol. 17, No. 9, 01.09.2014, p. 1025-1031.

Research output: Contribution to journalArticle

Miyajima, Kaya ; Fujisawa, Daisuke ; Yoshimura, Kimio ; Ito, Masaya ; Nakajima, Satomi ; Shirahase, Joichiro ; Mimura, Masaru ; Miyashita, Mitsunori. / Association between quality of end-of-life care and possible complicated grief among bereaved family members. In: Journal of Palliative Medicine. 2014 ; Vol. 17, No. 9. pp. 1025-1031.
@article{d18f78669a204bfe8443d6f12c34ea47,
title = "Association between quality of end-of-life care and possible complicated grief among bereaved family members",
abstract = "Background: Little is known about the association between quality of end-of-life care of a patient and complicated grief among bereaved family members.Objective: This study aims to examine the impact of quality of end-of-life care on complicated grief among bereaved family members in a Japanese general population sample.Methods: A mail-based cross-sectional questionnaire survey was used. A total of 641 individuals aged 40 to 79 years in the general population who lost their loved one within the period between 6 months and 10 years were enrolled. Complicated grief was assessed using the Brief Grief Questionnaire, and the bereaved family members' perceptions on quality of end-of-life care were assessed using the Care Evaluation Scale and the Good Death Inventory. Logistic regression analysis was used to identify the variables that associated with possible complicated grief.Results: Possible complicated grief was observed in 24.5{\%} of the participants. Three components of quality of end-of-life care, namely, dissatisfaction with the explanation to the family about the patient's expected outcome, unreasonable cost of care, and family's perception that the deceased person had not achieved a sense of completion about his or her life, were significantly associated with possible complicated grief. Spousal relationship, primary caregiver, and high psychological distress also had significant association. Conclusions: Perceptions on quality of end-of-life care were significantly associated with complicated grief. Providing sufficient information to patients' family about expected outcome and enhancing patients' sense of completion about their life may prevent bereaved family members from developing complicated grief.",
author = "Kaya Miyajima and Daisuke Fujisawa and Kimio Yoshimura and Masaya Ito and Satomi Nakajima and Joichiro Shirahase and Masaru Mimura and Mitsunori Miyashita",
year = "2014",
month = "9",
day = "1",
doi = "10.1089/jpm.2013.0552",
language = "English",
volume = "17",
pages = "1025--1031",
journal = "Journal of Palliative Medicine",
issn = "1096-6218",
publisher = "Mary Ann Liebert Inc.",
number = "9",

}

TY - JOUR

T1 - Association between quality of end-of-life care and possible complicated grief among bereaved family members

AU - Miyajima, Kaya

AU - Fujisawa, Daisuke

AU - Yoshimura, Kimio

AU - Ito, Masaya

AU - Nakajima, Satomi

AU - Shirahase, Joichiro

AU - Mimura, Masaru

AU - Miyashita, Mitsunori

PY - 2014/9/1

Y1 - 2014/9/1

N2 - Background: Little is known about the association between quality of end-of-life care of a patient and complicated grief among bereaved family members.Objective: This study aims to examine the impact of quality of end-of-life care on complicated grief among bereaved family members in a Japanese general population sample.Methods: A mail-based cross-sectional questionnaire survey was used. A total of 641 individuals aged 40 to 79 years in the general population who lost their loved one within the period between 6 months and 10 years were enrolled. Complicated grief was assessed using the Brief Grief Questionnaire, and the bereaved family members' perceptions on quality of end-of-life care were assessed using the Care Evaluation Scale and the Good Death Inventory. Logistic regression analysis was used to identify the variables that associated with possible complicated grief.Results: Possible complicated grief was observed in 24.5% of the participants. Three components of quality of end-of-life care, namely, dissatisfaction with the explanation to the family about the patient's expected outcome, unreasonable cost of care, and family's perception that the deceased person had not achieved a sense of completion about his or her life, were significantly associated with possible complicated grief. Spousal relationship, primary caregiver, and high psychological distress also had significant association. Conclusions: Perceptions on quality of end-of-life care were significantly associated with complicated grief. Providing sufficient information to patients' family about expected outcome and enhancing patients' sense of completion about their life may prevent bereaved family members from developing complicated grief.

AB - Background: Little is known about the association between quality of end-of-life care of a patient and complicated grief among bereaved family members.Objective: This study aims to examine the impact of quality of end-of-life care on complicated grief among bereaved family members in a Japanese general population sample.Methods: A mail-based cross-sectional questionnaire survey was used. A total of 641 individuals aged 40 to 79 years in the general population who lost their loved one within the period between 6 months and 10 years were enrolled. Complicated grief was assessed using the Brief Grief Questionnaire, and the bereaved family members' perceptions on quality of end-of-life care were assessed using the Care Evaluation Scale and the Good Death Inventory. Logistic regression analysis was used to identify the variables that associated with possible complicated grief.Results: Possible complicated grief was observed in 24.5% of the participants. Three components of quality of end-of-life care, namely, dissatisfaction with the explanation to the family about the patient's expected outcome, unreasonable cost of care, and family's perception that the deceased person had not achieved a sense of completion about his or her life, were significantly associated with possible complicated grief. Spousal relationship, primary caregiver, and high psychological distress also had significant association. Conclusions: Perceptions on quality of end-of-life care were significantly associated with complicated grief. Providing sufficient information to patients' family about expected outcome and enhancing patients' sense of completion about their life may prevent bereaved family members from developing complicated grief.

UR - http://www.scopus.com/inward/record.url?scp=84907011381&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84907011381&partnerID=8YFLogxK

U2 - 10.1089/jpm.2013.0552

DO - 10.1089/jpm.2013.0552

M3 - Article

VL - 17

SP - 1025

EP - 1031

JO - Journal of Palliative Medicine

JF - Journal of Palliative Medicine

SN - 1096-6218

IS - 9

ER -