Definitions and outcome measures for mucous membrane pemphigoid

Recommendations of an international panel of experts

Dedee F. Murrell, Branka Marinovic, Frederic Caux, Catherine Prost, Razzaque Ahmed, Katarzyna Wozniak, Masayuki Amagai, Johann Bauer, Stefan Beissert, Luca Borradori, Donna Culton, Janet A. Fairley, David Fivenson, Marcel F. Jonkman, M. Peter Marinkovich, David Woodley, John Zone, Valeria Aoki, Philippe Bernard, Leen Bruckner-Tuderman & 24 others Giuseppe Cianchini, Vanessa Venning, Luis Diaz, Rudiger Eming, Sergei A. Grando, Russell P. Hall, Takashi Hashimoto, Josep E. Herrero-González, Michael Hertl, Pascal Joly, Sarolta Karpati, Jaehwan Kim, Soo Chan Kim, Neil J. Korman, Cezary Kowalewski, Sang Eun Lee, David R. Rubenstein, Eli Sprecher, Kim Yancey, Giovann Zambruno, Detlef Zillikens, Serge Doan, Benjamin S. Daniel, Victoria P. Werth

Research output: Contribution to journalArticle

58 Citations (Scopus)

Abstract

Mucous membrane pemphigoid encompasses a group of autoimmune bullous diseases with a similar phenotype characterized by subepithelial blisters, erosions, and scarring of mucous membranes, skin, or both. Although knowledge about autoimmune bullous disease is increasing, there is often a lack of clear definitions of disease, outcome measures, and therapeutic end points. With clearer definitions and outcome measures, it is possible to directly compare the results and data from various studies using meta-analyses. This consensus statement provides accurate and reproducible definitions for disease extent, activity, outcome measures, end points, and therapeutic response for mucous membrane pemphigoid and proposes a disease extent score, the Mucous Membrane Pemphigoid Disease Area Index.

Original languageEnglish
Pages (from-to)168-174
Number of pages7
JournalJournal of the American Academy of Dermatology
Volume72
Issue number1
DOIs
Publication statusPublished - 2015 Jan 1

Fingerprint

Bullous Pemphigoid
Mucous Membrane
Outcome Assessment (Health Care)
Autoimmune Diseases
Blister
Cicatrix
Meta-Analysis
Phenotype
Skin
Therapeutics

Keywords

  • consensus
  • definitions
  • mucous membrane pemphigoid
  • outcome measures
  • severity score

ASJC Scopus subject areas

  • Dermatology
  • Medicine(all)

Cite this

Definitions and outcome measures for mucous membrane pemphigoid : Recommendations of an international panel of experts. / Murrell, Dedee F.; Marinovic, Branka; Caux, Frederic; Prost, Catherine; Ahmed, Razzaque; Wozniak, Katarzyna; Amagai, Masayuki; Bauer, Johann; Beissert, Stefan; Borradori, Luca; Culton, Donna; Fairley, Janet A.; Fivenson, David; Jonkman, Marcel F.; Marinkovich, M. Peter; Woodley, David; Zone, John; Aoki, Valeria; Bernard, Philippe; Bruckner-Tuderman, Leen; Cianchini, Giuseppe; Venning, Vanessa; Diaz, Luis; Eming, Rudiger; Grando, Sergei A.; Hall, Russell P.; Hashimoto, Takashi; Herrero-González, Josep E.; Hertl, Michael; Joly, Pascal; Karpati, Sarolta; Kim, Jaehwan; Chan Kim, Soo; Korman, Neil J.; Kowalewski, Cezary; Lee, Sang Eun; Rubenstein, David R.; Sprecher, Eli; Yancey, Kim; Zambruno, Giovann; Zillikens, Detlef; Doan, Serge; Daniel, Benjamin S.; Werth, Victoria P.

In: Journal of the American Academy of Dermatology, Vol. 72, No. 1, 01.01.2015, p. 168-174.

Research output: Contribution to journalArticle

Murrell, DF, Marinovic, B, Caux, F, Prost, C, Ahmed, R, Wozniak, K, Amagai, M, Bauer, J, Beissert, S, Borradori, L, Culton, D, Fairley, JA, Fivenson, D, Jonkman, MF, Marinkovich, MP, Woodley, D, Zone, J, Aoki, V, Bernard, P, Bruckner-Tuderman, L, Cianchini, G, Venning, V, Diaz, L, Eming, R, Grando, SA, Hall, RP, Hashimoto, T, Herrero-González, JE, Hertl, M, Joly, P, Karpati, S, Kim, J, Chan Kim, S, Korman, NJ, Kowalewski, C, Lee, SE, Rubenstein, DR, Sprecher, E, Yancey, K, Zambruno, G, Zillikens, D, Doan, S, Daniel, BS & Werth, VP 2015, 'Definitions and outcome measures for mucous membrane pemphigoid: Recommendations of an international panel of experts', Journal of the American Academy of Dermatology, vol. 72, no. 1, pp. 168-174. https://doi.org/10.1016/j.jaad.2014.08.024
Murrell, Dedee F. ; Marinovic, Branka ; Caux, Frederic ; Prost, Catherine ; Ahmed, Razzaque ; Wozniak, Katarzyna ; Amagai, Masayuki ; Bauer, Johann ; Beissert, Stefan ; Borradori, Luca ; Culton, Donna ; Fairley, Janet A. ; Fivenson, David ; Jonkman, Marcel F. ; Marinkovich, M. Peter ; Woodley, David ; Zone, John ; Aoki, Valeria ; Bernard, Philippe ; Bruckner-Tuderman, Leen ; Cianchini, Giuseppe ; Venning, Vanessa ; Diaz, Luis ; Eming, Rudiger ; Grando, Sergei A. ; Hall, Russell P. ; Hashimoto, Takashi ; Herrero-González, Josep E. ; Hertl, Michael ; Joly, Pascal ; Karpati, Sarolta ; Kim, Jaehwan ; Chan Kim, Soo ; Korman, Neil J. ; Kowalewski, Cezary ; Lee, Sang Eun ; Rubenstein, David R. ; Sprecher, Eli ; Yancey, Kim ; Zambruno, Giovann ; Zillikens, Detlef ; Doan, Serge ; Daniel, Benjamin S. ; Werth, Victoria P. / Definitions and outcome measures for mucous membrane pemphigoid : Recommendations of an international panel of experts. In: Journal of the American Academy of Dermatology. 2015 ; Vol. 72, No. 1. pp. 168-174.
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