Disclosure of cancer diagnosis and prognosis

a survey of the general public's attitudes toward doctors and family holding discretionary powers.

Hiroaki Miyata, Hisateru Tachimori, Miyako Takahashi, Tami Saito, Ichiro Kai

Research output: Contribution to journalArticle

Abstract

BACKGROUND: This study aimed to ask a sample of the general population about their preferences regarding doctors holding discretionary powers in relation to disclosing cancer diagnosis and prognosis. METHODS: The researchers mailed 443 questionnaires to registered voters in a ward of Tokyo which had a socio-demographic profile similar to greater Tokyo's average and received 246 responses (response rate 55.5%). We describe and analysed respondents' attitudes toward doctors and family members holding discretionary powers in relation to cancer diagnoses disclose. RESULTS: Amongst respondents who wanted full disclosure about the diagnosis without delay, 117 (69.6 %) respondents agreed to follow the doctor's discretion, whilst 111 (66.1 %) respondents agreed to follow the family member's decision. For respondents who preferred to have the diagnosis and prognosis withheld, 59 (26.5 %) agreed to follow the doctor's decision, and 79 (35.3 %) of respondents agreed with following family member's wishes. CONCLUSIONS: The greater proportion of respondents wants or permits disclosure of cancer diagnosis and prognosis. In patients who reveal negative attitudes toward being given a cancer disclosure directly, alternative options exist such as telling the family ahead of the patient or having a discussion of the cancer diagnosis with the patient together with the family. It is recommended that health professionals become more aware about the need to provide patients with their cancer diagnosis and prognosis in a variety of ways.

Original languageEnglish
JournalBMC Medical Ethics
Volume5
Issue number1
Publication statusPublished - 2004 Dec 1
Externally publishedYes

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Disclosure
cancer
Neoplasms
family member
Tokyo
Surveys and Questionnaires
health professionals
Research Personnel
Demography
questionnaire
Health
Population

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Disclosure of cancer diagnosis and prognosis : a survey of the general public's attitudes toward doctors and family holding discretionary powers. / Miyata, Hiroaki; Tachimori, Hisateru; Takahashi, Miyako; Saito, Tami; Kai, Ichiro.

In: BMC Medical Ethics, Vol. 5, No. 1, 01.12.2004.

Research output: Contribution to journalArticle

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abstract = "BACKGROUND: This study aimed to ask a sample of the general population about their preferences regarding doctors holding discretionary powers in relation to disclosing cancer diagnosis and prognosis. METHODS: The researchers mailed 443 questionnaires to registered voters in a ward of Tokyo which had a socio-demographic profile similar to greater Tokyo's average and received 246 responses (response rate 55.5{\%}). We describe and analysed respondents' attitudes toward doctors and family members holding discretionary powers in relation to cancer diagnoses disclose. RESULTS: Amongst respondents who wanted full disclosure about the diagnosis without delay, 117 (69.6 {\%}) respondents agreed to follow the doctor's discretion, whilst 111 (66.1 {\%}) respondents agreed to follow the family member's decision. For respondents who preferred to have the diagnosis and prognosis withheld, 59 (26.5 {\%}) agreed to follow the doctor's decision, and 79 (35.3 {\%}) of respondents agreed with following family member's wishes. CONCLUSIONS: The greater proportion of respondents wants or permits disclosure of cancer diagnosis and prognosis. In patients who reveal negative attitudes toward being given a cancer disclosure directly, alternative options exist such as telling the family ahead of the patient or having a discussion of the cancer diagnosis with the patient together with the family. It is recommended that health professionals become more aware about the need to provide patients with their cancer diagnosis and prognosis in a variety of ways.",
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