Abstract
This study assessed the symptoms, treatment, social systems use, and perception of living conditions of patients with young-onset Parkinson’s disease (YOPD), and investigated the support needed by them. Method: Among the 252 people who completed our questionnaire, we defined YOPD patients as those diagnosed as young onset or those with onset at ≤40 years. The data were compared with others. Results: There were 24 patients with YOPD (9.5%) (average age: 61.7 years), with an average disease duration 6.4 years longer (p < 0.01) and time until diagnosis 0.7 years longer (p < 0.1) than those of other patients. This group took 1.6 times more types of medicines, and time to their next appointment was 8.6 days shorter than that of other patients (p < 0.05). Patients with YOPD had more pulsive walking and more sweating (p < 0.05), and more motor fluctuation (p < 0.1). More patients with YOPD had a physical disability certificate but felt they were not obtaining the required services (p < 0.05). 45.0% of the YOPD group wanted to work more, more used information and communication equipment (p < 0.05), and more felt their medications were adequate (p < 0.1). Conclusions: Increased awareness of YOPD is needed. YOPD patients have motor fluctuation because of the longer disease duration. Thus, the support of doctors and nurses, and frequent examination visits, are indispensable for controlling symptoms to achieve middle age developmental tasks. Increased support for care-giving, leisure-time activities, and work is also necessary and may help maintain the desire to work in this group.
| Original language | English |
|---|---|
| Pages (from-to) | E180-E188 |
| Journal | Kobe Journal of Medical Sciences |
| Volume | 64 |
| Issue number | 5 |
| Publication status | Published - 2018 Jan 1 |
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Keywords
- Desire to work
- Developmental tasks
- Juvenile Parkinsonism
- Motor fluctuation
- Young-onset Parkinson’s disease
ASJC Scopus subject areas
- Medicine(all)
Cite this
Investigation of the treatment and living assistance needed by patients with young-onset Parkinson’s disease. / Iwasa, Yumi; Saito, Izumi; Fujii, Chieko.
In: Kobe Journal of Medical Sciences, Vol. 64, No. 5, 01.01.2018, p. E180-E188.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Investigation of the treatment and living assistance needed by patients with young-onset Parkinson’s disease
AU - Iwasa, Yumi
AU - Saito, Izumi
AU - Fujii, Chieko
PY - 2018/1/1
Y1 - 2018/1/1
N2 - This study assessed the symptoms, treatment, social systems use, and perception of living conditions of patients with young-onset Parkinson’s disease (YOPD), and investigated the support needed by them. Method: Among the 252 people who completed our questionnaire, we defined YOPD patients as those diagnosed as young onset or those with onset at ≤40 years. The data were compared with others. Results: There were 24 patients with YOPD (9.5%) (average age: 61.7 years), with an average disease duration 6.4 years longer (p < 0.01) and time until diagnosis 0.7 years longer (p < 0.1) than those of other patients. This group took 1.6 times more types of medicines, and time to their next appointment was 8.6 days shorter than that of other patients (p < 0.05). Patients with YOPD had more pulsive walking and more sweating (p < 0.05), and more motor fluctuation (p < 0.1). More patients with YOPD had a physical disability certificate but felt they were not obtaining the required services (p < 0.05). 45.0% of the YOPD group wanted to work more, more used information and communication equipment (p < 0.05), and more felt their medications were adequate (p < 0.1). Conclusions: Increased awareness of YOPD is needed. YOPD patients have motor fluctuation because of the longer disease duration. Thus, the support of doctors and nurses, and frequent examination visits, are indispensable for controlling symptoms to achieve middle age developmental tasks. Increased support for care-giving, leisure-time activities, and work is also necessary and may help maintain the desire to work in this group.
AB - This study assessed the symptoms, treatment, social systems use, and perception of living conditions of patients with young-onset Parkinson’s disease (YOPD), and investigated the support needed by them. Method: Among the 252 people who completed our questionnaire, we defined YOPD patients as those diagnosed as young onset or those with onset at ≤40 years. The data were compared with others. Results: There were 24 patients with YOPD (9.5%) (average age: 61.7 years), with an average disease duration 6.4 years longer (p < 0.01) and time until diagnosis 0.7 years longer (p < 0.1) than those of other patients. This group took 1.6 times more types of medicines, and time to their next appointment was 8.6 days shorter than that of other patients (p < 0.05). Patients with YOPD had more pulsive walking and more sweating (p < 0.05), and more motor fluctuation (p < 0.1). More patients with YOPD had a physical disability certificate but felt they were not obtaining the required services (p < 0.05). 45.0% of the YOPD group wanted to work more, more used information and communication equipment (p < 0.05), and more felt their medications were adequate (p < 0.1). Conclusions: Increased awareness of YOPD is needed. YOPD patients have motor fluctuation because of the longer disease duration. Thus, the support of doctors and nurses, and frequent examination visits, are indispensable for controlling symptoms to achieve middle age developmental tasks. Increased support for care-giving, leisure-time activities, and work is also necessary and may help maintain the desire to work in this group.
KW - Desire to work
KW - Developmental tasks
KW - Juvenile Parkinsonism
KW - Motor fluctuation
KW - Young-onset Parkinson’s disease
UR - http://www.scopus.com/inward/record.url?scp=85063616243&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85063616243&partnerID=8YFLogxK
M3 - Article
C2 - 30988265
AN - SCOPUS:85063616243
VL - 64
SP - E180-E188
JO - Kobe Journal of Medical Sciences
JF - Kobe Journal of Medical Sciences
SN - 0023-2513
IS - 5
ER -