Questionnaire survey on current status of home care and support for patients with hematological diseases

Akiko Adachi, Yuiko Tsukada, Sakiko Kondo, Keiko Asakura, Eri Matsuki, Shohei Kawagoe, Saori Hashiguchi, Hiroshi Nonaka, Junzo Takeda, Shinichiro Okamoto

Research output: Contribution to journalArticle

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Abstract

In order to survey the current status of home care and support for patients with hematological diseases, questionnaires were sent to 3,591 hospitals and home care facilities in Tokyo and surrounding prefectures. The first survey showed that 81.7% of medical staff members at hospitals reported that they had experience with home care and support, but only 24.9% of home care facility staff members had such experience. The second questionnaire, surveying 1,202 personnel, identified four factors hampering successful establishment of home care and support networks for hematological diseases. These included insufficient familial support for patients, difficulty making end of life decisions by family members and patients, limited access to transfusion support, and financial problems.

Original languageEnglish
Pages (from-to)2262-2270
Number of pages9
Journal[Rinshō ketsueki] The Japanese journal of clinical hematology
Volume55
Issue number11
Publication statusPublished - 2014 Nov 1

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ASJC Scopus subject areas

  • Medicine(all)

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