The quality of life of children with neurodevelopmental disorders and their parents during the Coronavirus disease 19 emergency in Japan

Riyo Ueda, Takashi Okada, Yosuke Kita, Yuri Ozawa, Hisami Inoue, Mutsuki Shioda, Yoshimi Kono, Chika Kono, Yukiko Nakamura, Kaoru Amemiya, Ai Ito, Nobuko Sugiura, Yuichiro Matsuoka, Chinami Kaiga, Masaya Kubota, Hiroshi Ozawa

研究成果: Article査読

18 被引用数 (Scopus)

抄録

This study aimed to reveal how the COVID-19 stay-at-home period has affected the quality of life (QOL) of children with neurodevelopmental disorders and their parents and to identify possible factors that enabled them to maintain their QOL. We enrolled 136 school-aged children (intellectual quotient ≥ 50) and their parents and administered QOL questionnaires to assess the maladaptive behavior of the children; depression, anxiety, and stress of the parents; and activities of their daily lives. The relationship between their QOL and clinical features was examined. The decrease in QOL of children and parents was associated with the mother’s limited job flexibility. Decreased QOL was also associated with changes in the sleep rhythms of the children. Maladaptive behaviors in children were associated with parental stress. However, maintained QOL of some families who faced these same conditions of job stress and sleep disorders was associated with less parental stress, less parental depression and anxiety, and milder maladaptive behavior in children. Both mothers with limited job flexibility and changes in the sleep rhythm of children were associated with reduced QOL of children and their parents. Low parental stress was associated with decreased maladaptive behavior in children and with maintained QOL of the family.

本文言語English
論文番号3042
ジャーナルScientific reports
11
1
DOI
出版ステータスPublished - 2021 12月
外部発表はい

ASJC Scopus subject areas

  • 一般

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